RARE DISEASE

Every Patient, Every Rare Disease. The ClinEdge Rare Disease program utilizes defined methods to compassionately engage, partner, and empower rare disease patients and their families. Our global strategies improve the clinical trial process by using the voice of the patient to build and support clinical trial programs, using their own journey and story to increase patient engagement and retention.

  • Patient & Caregiver Profiling
  • Advocacy and Support Group Partnering
  • On-site Clinical Staffing Support
  • Social Listening & Social Media Targeted Advertising
CARE, ACCESSIBILITY AND AWARENESS

Recruitment & Retention for Rare Diseases

Through a highly collaborative process, the ClinEdge Rare Disease mission is to advance the care, accessibility and awareness of clinical trials for rare disease communities.

Social Listening

Patient & Caregiver Profiling

Trial Feasibility

Content Strategy and Development

Digital Advertising

Social Media Engagement

Referral Management & Analytics

Database of Patients & Caregivers

1.LISTEN & LEARN

When Sponsors gain insights to a patient’s journey, it lays the foundation for a patient-centric campaign. ClinEdge assists with patient and caregiver profiling, support group partnering and social listening.

2.DEVELOP & CULTIVATE

Using these insights, ClinEdge supports Sponsors through protocol development and implementation of personalized recruitment tactics to allow for increased education and exposure of the study.

3.CONTINUE ENGAGEMENT

Patient engagement is attributed to specific tactics and technology to encourage commitment throughout the entire study duration. ClinEdge offers a patient education hotline and travel coordination support through our Patient Navigators.

Through a highly collaborative process, the ClinEdge Rare Disease mission is to advance the care, accessibility and awareness of clinical trials for rare disease communities.

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The best part of my job is having the ability to speak with various clients, learn about their exact needs and strategize a specific plan to create increased exposure for their clinical trials.

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